Archive for August, 2013

28
Aug
13

Breaking the Weight Barrier

Yay! We had a well visit and he weighed over TWENTY POUNDS!!! (20.8), BMI 15.5, and managed to stay on his curve within the bottom 1% for his age.

Since he’s looking good, and growing well we get to try coming off high calorie infant formula and just add some other types of high calorie liquids to his diet along with his food. I am so excited. We said goodbye to bottles about two months ago, and now we get to say goodbye to formula.

I know that it probably seems like a weird milestone to be so excited over. His high calorie formula and weight gain have been at the center of all my worries and fears since he was born. I feel like a very large scary elephant has finally started to lumber out of his corner of the room.

Sterilizing gallons of water and zillions bottle parts. Giving myself second degree burns leaning over a steam bottle sterilizer at 2am. Feeling like we should buy stock in Neosure. Going to cardiology. Having metabolic tests run and then run again. Weight checks.

Done, Done, Done!

For anyone out there still struggling through failure to thrive, or failure to gain, or any other preemie-ness things, I am praying for you and thinking of you, Moms and Dads. I hope you get some unexpected milestones to celebrate, too.

We celebrated last night by taking a picnic dinner to the city skate park and watching the bigger boys do flips and turns. He was ready to push his little umbrella stroller out and join them on the course.

26
Aug
13

Buying Shoes and Well (weight) Check Week

I learned an important Mommy lesson this weekend. In my brilliance, I planned to go get D’s next set of shoes from Stride Rite on a Saturday during back to school time. What was I thinking? 

We needed this new pair for Monday’s PT session, and I knew we could drop Daddy at work and be there when the store opened. Apparently every other toddler family in Cincinnati had the same plans. 

Luckily, I was smart enough to take him to breakfast first so at least we weren’t starving. After what felt like an hour of trying to keep D from playing with the girl with that suspicious toddler hack cough, we got his feet measured. No DIsney or Sesame Street novelty shoes for us. We need the hard walking shoes. In two different sizes. His left foot is a little less than half a size smaller than his right which can be pretty typical in clubfoot. Apparently even before you are sure of your kid’s shoe size, you should call ahead and make sure a range of sizes is available. 

Four hours, two malls, 50 miles round trip, a tired angry kid, and the loss of a piece of breakfast quiche we’d picked up to take back to Daddy later we had our two pairs of shoes. Thanks to rewards coupons and BOGO it was only a little more than one pair usually costs. Yay!

Somehow I managed to schedule an appointment for every day this week. It’s also the week before students come back at work, so I have some events and big projects there, too. My two sitters, “the grandmas”, are both going to be out of town this week.

Even though the 12 month well visit went fairly well, I still can feel that anxiety rise. It annoys me. I want to fold it up and put it in winter storage and lock it there. 

Everything has actually been going really well. He’s eating more solids and trying different textures more easily. With the PT and shoe changes, we now officially have a toddler who’s not pulling his hip and ankle ligaments all out of whack (hopefully).

FInal thing – One of my cousin’s friends has a 32 weeker still in the NICU. This little guy has some big surgeries tomorrow and some big hurdles to going home still to get over. He’s 13 weeks old and giving it his best fight. I’ve been passing on some NICU parent sites to his parents in the hopes that it’ll help them when they are ready to talk and look around for that person to listen and understand. He’s having a trache, fudoplication, and g-button surgery Monday morning in the hopes that it’ll give his body the rest and help it needs to get home from the NICU. So if you have a minute at 945am CST, please spare a thought for this little boy and family.

20
Aug
13

Eighteen Months Old

To my awesome dragon,

Time flies.

I almost forgot today was your month day. Since you started Early Intervention, I’ve relaxed a little. I like having the weekly interaction that tells me what we’re working on well and what we can improve on. I feel like there are a couple more people on our team.

Here’s a few facts about you as you hit 1.5 years old:

Drake’s favorite toy: A mini broom. I’ve been informed that this desire to help clean will not last. Sadface.

Drake’s New Milestones: Now that we have you in new supportive shoes you are walking all over. You were so frustrated just a month ago, and it’s so awesome to see you toddle around giggling.

Drake’s favorite game: Peek-a-boo, you like to hide behind furniture and pop out laughing.

Drake’s favorite food: Cottage Cheese. You love, love it. Aunt Amy was eating some in front of you on Skype and you demanded it quite clearly. “DAT!”

Drake’s least favorite thing: Nite-Nite Shoes. No more laying still letting me put them on. It takes me, Daddy, a cup of formula, and a song. But you fall immediately asleep after.

Drake’s Teeth: 4 on top, 4 on bottom and starting 2 of big bottom ones.

Every day you look more like a little boy, and less like my 2lb baby.

Love,

Mommy

17
Aug
13

Saturdays

Someone posted a saying on facebook the other day that caught my eye.

“There are only 940 Saturdays with your child from birth to age 18. Make each one count.”

Wow. My crazy accounting nerd side loves facts and figures.

A smart mom then posted, “Make that until age 13. Around that time they want their friends or activities more than quality time.”

Sure we lost a couple of Saturdays to NICU days, isolation, and hospital readmission, but just think of the potential for adventures.

This year on Saturdays we’ve ….

1. Visited the Grand Canyon

2. Explored the Cincinnati Zoo

3. Gone to get ice cream

4. People watched at the mall

5. Had a picnic lunch

6. Seen a Reds game

7. Visited downtown Cincy

We still have on our list to go to Krohn Conservatory. The kid loves plants. As in, rubs his face with leaves and squeals in delight or touches lightly and stares in awe loves plants. He doesn’t get this from his father or I. We enjoy a nice walk or hike through nature, but…

The Plant story. The summer before I was pregnant, we had a ivy someone had gifted us with. We had a plant hanger my husband had made 20 years ago in scouts and the people in our house before us had left one of those hooks in the ceiling. Up went the hanger and the plant.

One random day, my husband proudly announced he was going to water our plant. He called me over to it. What had once been a green, thriving ivy was an inch long dried out stem. Now we have plastic flowers.

Poor plant. And I guess D is lucky that he has to have such a strict feeding schedule.

Daddy has to work tomorrow, so I’m thinking tomorrow’s Saturday adventure involves swinging at the park and a trip to the dairy hut and it’s 24 soft serve flavors!

 

12
Aug
13

Sixteen Years, Thirteen Married

One thing I REALLY haven’t juggled well as a mom is remaining a good wife. Since D is our only child, I have no reference for what things may have been like if our mini family didn’t get off to such a rocky start in the beginning.

August 5th was our wedding anniversary. It was a typical Monday. We both went to work carpooling together. It was one of the days that Drake comes to work with me. That night, we made dinner and watched a movie while eating in the LIVING ROOM instead of at the table. We’re rebels like that. 🙂

I did put a sheet under the high chair though.

It was fun to make our son a part of our celebration. I need to work on the taking the leap and trying a sitting thing though. Gammy and GG aren’t available for date nights very often, and I think it’s past time we work on that.

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Wedding fun fact: We had two wedding songs Everything I Do by Bryan Adams and then It’s the End of the World As We Know It by R.E.M.

11
Aug
13

Nite-Nite Shoes

We’ve reached an interesting place in Drake’s Ponseti treatment. He’s in his first pair of “toe-lift” shoes now that he’s toddling around. For the first time, we’ve started having trouble with rub marks and pressure sores. He’s also at the stage of fighting me when putting on his shoes, and you can’t really reason with a 1 year old. Waking up to shoes being kicked repeatedly into a crib slat while a chorus of “ow, ow, OW, OW, OWWWWWW!” is screamed is also awesome at 6 am on Sunday.

Because the goal is always to stop the red marks from becoming blisters, parents are told to watch for bright red spots that don’t fade away after 20 minutes at the start of the bracing period. 

When I called his doctor’s primary nurse, I was told to try these things and then schedule an appointment with the doctor if nothing worked.

1. Thicker socks.

2. Remove the “pressure saddle” (white plastic curved piece that fits over the middle strap across the ankle) so the straps would tighten futher and reduce any slipping.

3. Cover red marks with the blister cushion band aids or fabric style band aids.

4. Make sure all straps are tightened as tight as possible. 

We are very strict in his brace wear. There’s always a possibility of relapse, but I would hate for the reason to be my not following protocols. I didn’t realize how much I’d miss the 3 month checkups. After 1 year of treatment you go to annual visits, it was nice to “check in” and hear we were doing great last year. 

08
Aug
13

Everyday Miracles

Today was an ordinary day.

Great Grandma came over and we took a walk.

Drake wore a baseball hat without freaking out for the first time.

We went and had Blizzards for miracle treat day! Our local CMN hospital is Cincinnati Children’s. Home to his NICU neonatologists and his follow up specialists.

A regular day. We sang songs and ate homemade pizza. We practiced our therapy exercises and he asked to take a walk! (Wahk, wahk?)

I love living a miracle. Every. Day.

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Drake’s 3rd Birthday

February 20th, 2015

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