Nite-Nite Shoes

We’ve reached an interesting place in Drake’s Ponseti treatment. He’s in his first pair of “toe-lift” shoes now that he’s toddling around. For the first time, we’ve started having trouble with rub marks and pressure sores. He’s also at the stage of fighting me when putting on his shoes, and you can’t really reason with a 1 year old. Waking up to shoes being kicked repeatedly into a crib slat while a chorus of “ow, ow, OW, OW, OWWWWWW!” is screamed is also awesome at 6 am on Sunday.

Because the goal is always to stop the red marks from becoming blisters, parents are told to watch for bright red spots that don’t fade away after 20 minutes at the start of the bracing period. 

When I called his doctor’s primary nurse, I was told to try these things and then schedule an appointment with the doctor if nothing worked.

1. Thicker socks.

2. Remove the “pressure saddle” (white plastic curved piece that fits over the middle strap across the ankle) so the straps would tighten futher and reduce any slipping.

3. Cover red marks with the blister cushion band aids or fabric style band aids.

4. Make sure all straps are tightened as tight as possible. 

We are very strict in his brace wear. There’s always a possibility of relapse, but I would hate for the reason to be my not following protocols. I didn’t realize how much I’d miss the 3 month checkups. After 1 year of treatment you go to annual visits, it was nice to “check in” and hear we were doing great last year. 

2 Responses to “Nite-Nite Shoes”

  1. 1 Iona
    April 24, 2014 at 12:35 pm

    You sound like you’re doing fantastically. Our son has bilateral clubfoot and he’s just turned one. Luckily the children’s hospital in Milan follows the Ponseti method and have been great. After wearing the Mitchell boots for months the doctor has switched him to the Dennis Browne boots, which we are all struggling with; they clearly weren’t designed for nursing mothers! I hate the laces and the fact they don’t detach from the bars, but the hospital wouldn’t justify the cost of Dobbs bars. Luckily we too are down to 12 hours a day. Thanks for your blog, discovering other mothers’ stories really helps.

    • April 24, 2014 at 9:00 pm

      Oh wow! I can’t imagine boots that don’t detach. That really makes putting them on a struggle I’m sure. It is awesome funding other families I imagine Clubfoot and other challenges felt much lonelier in the pre-Internet times.

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