Archive for September, 2014

26
Sep
14

Neonatal Intensive Care Remembrance Day

For all the families who we heard their hearts break and for all the beautiful lives lost too soon. We remember you.

September 26, is Neonatal Intensive Care Remembrance Day.

You can learn more about Neonatal Intensive Care Awareness Month at:

www.nicawareness.org

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19
Sep
14

Day Out With Thomas

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Last weekend, we went with Gammy on a train ride!

Thomas and all if his friends were there, and Sir Topemhatt made Drake a Jr. Engineer.

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15
Sep
14

Happy NICU Nurses Day!

To the Ladies and Gentleman at Good Sam who took care of our little man:

Thank you, thank you, thank you from the bottom of our hearts. Today, we have a two and a half year old full of boundless energy and spirit. He loves Thomas the Tank Engine and Jake & the Neverland Pirates. He says grace when I give him a Hershey’s kiss for going on the potty. He’s just learning to say, “I wub Mommy.”

He’s still in his night-night shoes for his left clubfoot. He’s in SMO’s now for his Hypotonia. He still struggles with weight gain and reflux. However, he loves to play outside. He loves to give hugs. He BEGS to go to his grandma and great-grandma’s house, or to call Nana and Papa on the iPad. He still loves to be held as he falls asleep. He still loves his NICU puppy dog quilt. He’s really excited to be visiting “Mickey’s house” next month and to wear his Jake costume.

We wanted to drop off a card, picture, and some goodies to you today, but Mommy had an early meeting at work. We will stop in later this week.

All Our Love,

Drake’s Family

04
Sep
14

The Sigh

I am so, so grateful for Dr. Ponseti and his Ponseti clubfoot treatment. It means that Drake has a chance of full foot correction without a lifetime of scars, surgery, and pain. There is always a chance even with strict following of treatment protocol that there can be relapse. It’s something that I’m sure all clubfoot/talipes parents live in fear of.

But, oh, that sigh. The huge heave of chest and shoulders that the little dude gives as he gives up resistance, holds tight to bubble puppy or Jake the pirate, and says “ok, nite shoes, mommy.”

That sigh. So sorry baby boy.

Oh a happy note. His Gammy is treating us to a week at her timeshare in Orlando next month. Yesterday, we hit the Disney store for the first time. It made me so excited to see his reaction to the actual park. He was running around. Peter Pan! Bucky! Jake! Mickey Mouse! Plane! It was freaking adorable. Mickey’s Not So Scary Halloween Party, we will see you in 3 weeks! I’ll be there with Jake and Capt Hook. I’m the Pirate Princess, of course!

Looking at those princess dresses makes me super relieved to have a boy!




Drake’s 3rd Birthday

February 20th, 2015

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