Archive for the 'Birth' Category

29
Apr
13

A Little Cloudy, A Little Wet, A Lot of Fun!

What a great day of fun with family and friends! And how inspiring and healing!

I really wish I had made the time to attend the family team poster event sponsored by our NICU. That display of posters for angel babies and other NICU grad families was probably the single most powerful thing I have witnessed since last February. Such beautiful loving tributes.

Amazing to see so many preemie, NICU, and birth defect affected families coming together for a cause they feel so strongly about.

Plus, I got to stand next to a NFL player!

The best part was of course the great snapshots of our son getting to enjoy a large event for the first time.

Family Team Photo

Family Team Photo

Waiting For Start

Waiting For Start

Ominous Clouds, 4 miles to go

Ominous Clouds, 4 miles to go

Check Point NKY, halfway

Check Point NKY, halfway

Crossing Bridge from NKY back to Cincinnati

Crossing Bridge from NKY back to Cincinnati

Crossing the finish line!

Crossing the finish line!

Good Sam was our NICU hospital

Good Sam was our NICU hospital

# of Premature births in Ohio

# of Premature births in Ohio

Why We Fight

Why We Fight

It was a celebration, and I needed it. We exceeded our team goal by $200!

 

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27
Apr
13

March for Babies

Tomorrow we walk. Maybe in the rain, maybe in the sun.

Jodi of Peek-a-Boo ICU says it best, I think, “We fight because babies shouldn’t have to.”

Team Drake-growing baby dragons is going to walk for

Our amazing former 30 weeker, Drake.

For Margaret Elmer, an angel too soon.

For Jaron, born at 32 weeks and Mallory and Annabel born at 33 weeks.

For Baby Branch, born at 29 weeks far from home.

For all our Nicu friends in DAND.

For all congenital birth defect warriors, fighting to get their hearts, feet, or other challenges conquered.

For the preemies and NICU families we know only through their stories Owen, Jack, JP and others.

This walk’s for you!

Much love,
Team Drake

20130427-224400.jpg

20130427-224415.jpg

27
Apr
13

Age is Just A Number

19 minutes ago, my son reached 12 months adjusted age.

Today, we used our Zoo membership we received at Christmas for the first time. It was a gorgeous 65 degree day, and Drake just loved being outside and riding in the stroller.

He especially loved the ducks. He makes a sound we are pretty sure is a quack at them. He also was fascinated by the cows. We just did a 2 hour jaunt. Since we have an annual pass, there’s no reason to try to make him do a whole day and everything at once.

I was a nervous wreck reminding the other adults to wash hands and not let him touch surfaces. All I could think about was the fact that we did our job and kept him isolated that first year, but now what will happen.

And I hate it. I just want to enjoy family outings and milestones. I want to let the fear and horror go. It’s time to try to move on somewhat. I know that it is.

A family member was with us. She pointed out a very, very pregnant lady to me and said, “Look at her. Doesn’t she look miserable and ready to pop? Aren’t you glad you never had to go through that?”

WHAT?

I just said, “No, I would much rather have walked around miserable than go through the NICU and not bringing my baby home right away.”

What I wanted to do was slap her.

I have no way of knowing how uncomfortable the 31st through 40th weeks of pregnancy are. I only made it to 6 months, 2.5 weeks.

But I know what it’s like to lie alone in a hospital bed sobbing because you haven’t touched your child that has a tube down his throat helping him breathe as you listen to babies crying in all the rooms next to yours while you try to pump out trickles of milk that just won’t come.

I can’t be philosophical today. I can’t be thankful that my journey wasn’t as hard as it could have been.

All I can do is cry over the fact that I should be celebrating a 1st birthday, and instead I’m worried about my 17lb 14 month old who is refusing to eat again suddenly.

I could keep ranting, but it definitely won’t make me feel better, and it will make me look like the crazy person some people think I am these days.

After the zoo, we went to the grocery store. The awesomeness of doing this mundane errand as a family was ruined for me by the cashier’s oh he’s cute how old?

14 months..

Really? He seems small.

…sigh

I changed my mind. Can we be on isolation until he’s 18?

 

 

 

 

05
Mar
13

Preemie Milestones

One year ago today, we were on the 14th day of Drake’s NICU stay. We found out that he would have his PICC line removed after morning rounds.

One less wire, yay!

Of course, I also remember that this led to some slow weight gain, concerns about metabolic disorders, and 26 calorie/ounce formula (which he’s still on).

But March 5, 2012 was a day of celebration. It wasn’t the first preemie milestone we celebrated or the last, but it was one more footstep closer to HOME.

 

cuddle PICC dad picking up

 

This was earlier than March 5th, but it showcases the PICC cuddle as Daddy goes to lift him for my first Kangaroo care with us all present. He was 6 days old.

21
Feb
13

Birthday Fun

12 month wellness yesterday and a birthday!

At 12 months old

Height:  28 inches

Weight: 16pounds, 14ounces (exactly 8 times your birthweight!)

Head: Now at 17th percentile for actual age (way to go buddy!)

Notes: You get to come off Neosure and move to regular formula still mixed to 26 cal/oz for now. Enjoy all the “big people” food you’d like to! Doc says enjoy it while you can!

Favorite Toys: Shape Sorter, Learn n’ Play Piano, Any book you can get your hands on

Favorite Song: The theme to Star Trek: Enterprise, it’s a hoot to watch you hear it come on

Favorite Food: Sweet Potatoes (I think cake now trumps it, followed closely by onion, mushroom LaRosa’s pizza)

New Things: You have started saying Mom-Mom, Da-Da, and No in the last few weeks!

Can’t wait to see what the next year holds!

2-20-12 2lbs, 14oz, 15 inches

Born Too Soon

 

 

 

 

 

 

2-20-13 16lbs,14oz, 28 inches

Sep - Jan 065

18
Feb
13

A New Preemie Family

As I gave advice to my friend on her brother and his wife’s needs over the phone Sunday afternoon, I was taken back to that place where nothing from anyone was a comfort or help.

The scariest moment. When 10 people rushed into a triage room with me, and looked at some monitors and made me get in a fetal position on my left side  and put an oxygen mask on me. Hands down the worst moment of my life. I had just arrived by ambulance 20 minutes prior from our neighborhood hospital that only has a Level II NICU. My husband hadn’t yet been allowed to join me. When I think about that moment one year later, I still get nauseous.

The new preemie mama and daddy that were made today had twin girls at 33+6. The first baby came naturally, but an emergency c-section was needed for the second. Please keep this new NICU family in your prayers. I hope their little ladies are feeder/growers and home soon! And all my best to the mama as she heals.

Ironically, this friend and her husband were our support the night I was admitted. They came to the hospital to support my husband through a night where the slightest movement from me would make baby’s heartbeat coming through the monitor fade away. They are wonderful, beautiful people and I am so sorry prematurity has touched their family almost 1 year to the day after they stayed up all night with us.

11
Feb
13

Anniversaries

This has been such a weird month for me. Luckily, Drake is doing wonderfully. He’s pulling to stand, and moving between furniture.

Saturday night I went over to a friend’s house for dinner. Due to various things and sickness I had to avoid for my son’s sake, I hadn’t seen her since the day my water broke almost a year ago.

I feel so morbid like I’m dwelling on how my son got here instead of how awesome he is.

Saturday, I threw on my black leather jacket because it was too warm for my winter coat. In the pocket was a receipt for 2/19/12 at 8:58 pm. I had run to the store to get my yogurts for my work lunches for the week. At 10:02pm as I crawled into bed and turned over to the left, I felt the weird pop that made me get back up and head to the bathroom. I was so scared. Little did I know it would get so much scarier.

I have the hope that getting past my son’s first birthday will propel me past the regret and the memories.




Drake’s 3rd Birthday

February 20th, 2015

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