Archive for the 'Birthdays' Category

08
Mar
16

Tomorrow!

Well visit tomorrow to discuss all the things (and get shots, yuck!). The nurse called yesterday for the pre-planning phone session. I picture the RN’s at our pediatrician’s office doing paper, rock, scissors over who has to call me. “Oh that’s the mom that will actually have real, scary questions. I’m doing that one after lunch!”

I have my pediatric research data file and questions in hand. I really hope I am not over “Dr. Google-ing.” I tried to limit myself to one week buried in fear and seeking answers online. Then I stopped (until today) in an effort not to fall into what hubby calls “my cycle of negativity and panic.” Husband and I discussed our plan. We present our findings and feelings, we listen to our trusted pediatrician’s feelings, and if we aren’t comfortable with his opinion we will request a referral to the specialist at Children’s.

I’m still unsure about genetic testing. I don’t know if we should start with the genetic counselor and then go to the specialist. We’re just really lost still and we are praying that our pediatrician can steer us in the right direction without dismissing things entirely.

We’re also hoping our growth chart results are still ok. He’s been fluctuating between 28.3 and 30.6 pounds for the past year. He did top off at 31.2 at his last specialist appointment, but that just seems awfully small for a 4 year old. He was also borderline on anemia last year, so I mentioned whether we should do that check, also. And Orthopedics follow up is Friday for our first annual clubfoot check up after giving up night-night shoes!

On a positive note, HE EATS VEGGIES NOW!!!! One night we sat down at the table and he just started gobbling up peas. I was so flabbergasted that I stared, but luckily I kept my mouth shut. Now he will request peas as a snack. Preschoolers, am I right?

 

 

 

21
Feb
16

Four-ever

Mickey Cake!31fd6b90-cb8a-44f9-99df-b6f51e53cf0eHappy 4th birthday, buddy!

It was so much fun to celebrate our kid this weekend.

We had our first winter public birthday party with his friends at an indoor inflatables place.

The King is Here!

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I am sorry for the lack of updates. We had a big specialist appointment looming and I just didn’t have the gumption. Now I have a diagnosis with more questions than answers, and I’d rather just celebrate my handsome guy.

Also, this is the 4th anniversary of going from vent to CPAP and getting to touch his hand! So glad his nurse made me start a calendar journal.

 

 

 

 

26
Feb
14

Bubble Guppies Party

What time is it? It’s time for a fun post! We have no doctor’s appointments, copays or follow-ups this week. It’s even a bye week for therapies as PT is on vacation and we only have developmental every other week now. 

Our son, along with his entire toddler class at school, lives and breathes Bubble Guppies. Despite Mommy’s attempts to make him a Sesame Street fan like I was. He has a healthy appreciation for Elmo and the gang, but they are no match for the bright colors and rocking songs of Gil and his buddies. Add to it that my sister bought him every conceivable BG toy for Christmas, and he’s gone. 

I will admit to a secret guilty pleasure of most of their music videos. They are super easy to sing and dance to.

We held a Bubble Guppie themed party on Saturday after his birthday with our family. I tried to keep things simple and homemade where I could, but I did get a bit splurgy on the treat baskets at Dollar Tree. 🙂

Kids won't notice the tropical tablecloth has adult beverages on it right? Virgin ones obviously!

Kids won’t notice the tropical tablecloth has adult beverages on it right? Virgin ones obviously!

 

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Not handcrafted, but handpicked online!

 

Also purchased. I'm not an artisit, cake or otherwise.

Also purchased. I’m not an artisit, cake or otherwise.

 

Blue Hawaiian punch with rainbow sherbert added to "foam". It was a hit with short and tall patrons.

Blue Hawaiian punch with rainbow sherbert added to “foam”. It was a hit with short and tall patrons.

 

Kids snack table, goldfish medley, gummy fish, and bath toys

Kids snack table, goldfish medley, gummy fish, and bath toys

 

 

Fishketball, too much motion!

Fishketball, too much motion!

 

 

 

Fishketball

Fishketball

 

 

 

 

 

 

 

 

Candle blowing is awesome! (incognito cousin!)

Candle blowing is awesome! (incognito cousin!)

 

Where did this KID come from?

Where did this KID come from?

 

Great Granny

Great Granny

 

Even Gammy's doggie was ready to party it up!

Even Gammy’s doggie was ready to party it up!

I didn’t take pictures of some of the food we also had Clam Cookies (a pinterest find), Bubble Bites (cake pops), and Shark Teeth (cheese cut into triangles).

For treats for the three boys, I went to Dollar Tree. They had mini pails in neon green two for $1, 3 packs of bubbles, these huge jumping frogs in flourescent colors. Then we also threw in a party horn, party hat, and lei. 

That’s the last birthday post, I promise! It was totally fun to have everyone come, without restrictions. Even though D does have another cold now. Sadface. 

 

 

 

 

 

 

 

 

 

21
Feb
14

Two!

We made it through year two! Bring on the potty training, new ways to fix his feet, and our first Disney trip in the fall.

When he woke up, we asked him if we could take his nite-nite shoes off, he said NOPE, my shoes! That is a first.

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Nope, my shoes!

Yesterday he had his first birthday party at school with cupcakes and other fun activities. He was not a fan of his birthday hat.

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Barely Tolerating Face

After school and work, Daddy and I took him out to dinner and to explore a toy store.

Mmm pizza

Mmm pizza

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Then we came home for cake and presents while his grandparents watched via FaceTime. Side note: Video chat is the best invention EVER. I totally would not survive living this far from my parents and siblings without it. It gives Drake the chance to develop a relationship with them better than if he only got to make a few visits a year, too.

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Blue cake icing has the ability to make a hand blue even after a bath. Apparently hand sanitizer will remove it. Thanks Aunt Amy!

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Today, we had an appointment to get new Mitchell shoes for his Ponseti bar and then his wellness visit. The insurance covered his shoe upgrade *insert HUGE sigh of relief* except for co-pay, and he was in the 3% for weight!  We gained back 2lbs of what he had lost while sick. I feel like I won that 400 mil jackpot. 🙂

And his pediatrician concurred with his NICU and First Steps physical therapists about the orthotics. That is good news, too, in case I can’t get his orthopedic doctor on board for the prescription.

That very first birthday may have been way less than ideal, but thanks for making each following one such a blast, little buddy. It’s so hard to believe that we have a KID not a BABY anymore.

19
Feb
14

Last Day As A One Year Old

Drake’s Likes:

Bubble Guppies

Trucks

CLIMBING

Chocolate

Cookies

Drake’s Dislikes:

Having his hair washed, brushed

His car seat

Sitting

Loud Noises

The Dark

Most Frequent Words

Nope

Oooo-kay

Stop

Nuk (milk)

Mama..maaaama…Mommy

Daddy

Gammy

Chocolate

Cookie (1st sentence, “I need a cookie.”)

Favorite Songs

Twinkle Twinkle Little Star

Wheels on the Bus

5 Little Monkeys

We received his NICU clinic official final report. Gross motor was in the 18 month range and everything else was 22-28 months. Woo hoo, little dude! Friday, I have a meeting with his pediatrician to make a new nutrition plan to try to recoup what we lost to winter sickness on the weight front.  Tomorrow, he has cupcakes for his class and then we’re going to take him out for pizza and balloons after school. Then cake and ice cream at home with presents, of course!

 

16
Feb
14

Countdown

I’m in countdown mode…

Feb. 4, 2012 family baby shower, I was barely third trimester but insisted I just had a “feeling” I was going to be on bed rest due to complications.

Feb 6, 2012 my father’s mom, my granny’s funeral was on this day 8 hours away. She had passed away on my shower day due to complications from Alzheimer’s. I thought being on travel restrictions would be the big tragedy of my pregnancy.

Feb 10, 2012 I was in a car wreck. Checked out on Monday by OB. All fine.

Feb 17, 2012 I went to dinner with some girl friends.

Feb 18, 2012 tired, achy and had desire to wash the walls, what the …baby very active. ultrasound and NST scheduled for Monday so not too worried

Feb 19, 2012 spent day with friend watching NCIS marathon. She watched, I slept while our husbands tore carpet out of my house for new floor to be installed. I am 30 weeks. At 1005 pm I shut off light lay down and feel a pop. Turn on light to what I know is water breaking. Call on call doc and head to hospital. Call my mom who is 12 hours away and pretend I’m not panicking. Call husbands mom who is in Vegas with a friend. Arrive at hospital.

At that point, time slows. I can relive each second until the next morning at 1004am on February 20, 2012. I think this time I just want to enjoy this hat picture.

His first non NICU hat and his current winter hat 🙂

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13
Feb
14

Final Discharge

We had our final NICU follow up clinic visit this week. The child I brought to this visit was a little on the skinny side, but was so completely different development-wise when compared to last June that I think his team was shocked. Thank you, Early Intervention! Last June, we weren’t walking, gesturing or talking. And the results from that June visit had this mama really scared.

This final visit was a great visit. I’m really going to miss his Physical Therapist, Christy. She taught me how to do his exercises for his hips and legs, and navigated me through the diagnosis of his clubfoot and what treatments and outcomes to expect in our NICU days. I didn’t realize how much I’m going to miss his neonatologist and the rest of that team. They’ve scared me and reassured me, and gotten us through moments we never expected.

We are going to be getting him fitted for orthotics soon. In addition to the left clubfoot, he’s having a lot of issues with balance and transitioning still. We’ve increased his PT visits with EI from once every 3 weeks to once a week, and decreased his DI visits from once a week to once a month. If we can’t get his feeding habits to improve, we’re to do an eval with OT through EI in the next 60 days. The neonatologist warned me that the low tone would follow him for the rest of his life, but that it shouldn’t stop him from any physical endeavors he wants to pursue.

So goodbye, birth hospital. The rest of Drake’s follow-ups will all be with Cincinnati Children’s from now on. Posters for March of Dimes in April are usually made at his birth hospital, and once the restricitions of cold and flu are lifted we plan on taking a trip back to the NICU.

I’ve been thinking alot about that whole “catch up by two” thing as his birthday looms next week. I’m not sure about Drake, but I’ve certainly been in a better place emotionally in the past few months. I’ve done a better job of taking care of me and my family. I let my health go pretty far downhill in the first 6 months after his homecoming. It’s nice to feel more like ME.

 




Drake’s 3rd Birthday

February 20th, 2015

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