Archive for the 'Everyday Miracles' Category

30
Mar
16

Just One of Life’s (Embarrassing) Moments

My husband left yesterday morning for a business trip. He’ll be back on Friday. The night before, he decided that he needed a couple extra polo shirts and some undershirts and socks. We headed to Kohl’s.

D had skipped his nap, so he fell asleep in the car seat as soon as he was strapped in. We shopped and he woke up about the time we were ready to check out. A quick trip through the toy aisle so he could just “see” and we were ready to go.

D’s in a “helper” stage and wants to be involved in everything. Kohl’s has these really deep shopping carts with a kiddie seat. We had thrown the socks and undershirts in the bottom, and lay the shirts across the top. I bypassed the polo shirts laying on the top of the cart to get the undershirt package that was laying in the bottom. Right when I was coming up with the shirts. Drake yanked up on the polos. So when you fish, the hook catches the fish. I think I know what that feels like now.

That metal coat hanger went up my left nostril and stuck there because the end was sharp. I immediately tried to carefully remove it,, streaming blood, and as visions of going to the ER with a hanger on my face danced in my mind. Luckily, it came free. I’m streaming blood from my nose trying not to get it anywhere and trying not to freak out. Drake is screaming, scared and my husband is telling me to head to the bathroom.

The lady behind me hands me a wad of tissues to hold on my face as I trek 10 miles from the registers to the back of the store where the restroom is located. A bit of pressure, a good washing, and a cold rag later and I was good to go.

I came out to my husband waiting for me because he had no way to pay for the goods. I had his wallet and phone in my purse since he had tried on some clothes. The second trip through the register went much better.

I called my mom (she’s a RN) and asked what was safe to clean and treat the inside of my nose. She gave me some instructions and finished with the parting advice to never underestimate how quickly a little kid can execute a take down.

One of my friends said she hoped I wouldn’t be offended if she got him a fishing pole next year for his birthday. He’s already got one, and I guess all that practice casting the little weighted fish has paid off.

 

 

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21
Feb
16

Four-ever

Mickey Cake!31fd6b90-cb8a-44f9-99df-b6f51e53cf0eHappy 4th birthday, buddy!

It was so much fun to celebrate our kid this weekend.

We had our first winter public birthday party with his friends at an indoor inflatables place.

The King is Here!

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I am sorry for the lack of updates. We had a big specialist appointment looming and I just didn’t have the gumption. Now I have a diagnosis with more questions than answers, and I’d rather just celebrate my handsome guy.

Also, this is the 4th anniversary of going from vent to CPAP and getting to touch his hand! So glad his nurse made me start a calendar journal.

 

 

 

 

24
Apr
15

Spring School Pics

I love that his school does pictures in the spring and fall. He changes so much every week!

  
We are having a beautiful spring although this weekend is a bit cold and rainy for me.

   
               

This is the new family team quilt for the Greater Cincinnati March of Dimes chapter. It made me catch my breath. Our walk is Sunday.

17
Aug
14

Back to School, Work, Life

In two weeks, I will officially go back to full-time hours at work. By January, I will have completed enough Master’s level courses to try teaching my first class, so this fall I am receiving mentoring on instructional design and classroom management. In the midst of all of that excitement, Drake will be going to school full-time for the first time. Since February, he’s been going part-time 2 days a week while I go to the office. He’s been doing really well, so we feel he’s ready for more.

I am super from being a domestic goddess, and for someone who is home a majority of the week my household chores could probably have been done a little better. However, I have lots of memories of morning walks, coloring and finger painting, dancing to Choo-Choo train songs, turning a kiddie couch into a car, table forts, and couch snuggles for story time. We had random trips to the zoo just to ride the train, therapy visits from EI, and going to the park after nap time.

I know I will always treasure this 2.5 years at home. At first, it was to protect his preemie immune system. Then, it was to make sure we made the most of his Early Intervention and other therapies. Now it’s time for him to learn how to enjoy the company of other kids and following a classroom routine, and it’s time for mommy to resume working. My little guy isn’t a fan of following plans that aren’t his own.

When we were first in the NICU and for the first year home, prematurity, its effects, and my guilt were all-consuming. These days, I follow more clubfoot treatment groups on Facebook than preemie ones. As he grows, I worry whether I am using his “night-night” shoes optimally to give him the best chance of full correction. We’ve had several nights of “ouch hurts” and “nite shoes off” screaming lately in the wee hours which always make me nervous, but usually ends up coinciding with a growth spurt.

I will never, ever forget my fear when he stopped breathing after choking due to GERD two months after coming home. The fear in the paramedic’s eyes on the ambulance ride to Children’s when he realized he didn’t have a mask small enough. Those memories are being supplanted by the sight of an excited two year old boy on a ferry ride or the thrill he has when he spots a train on a bridge.

We aren’t done dealing with the effects of prematurity. We’ve just been very lucky. He will probably always wear AFO’s for low muscle tone and weak ankles. We’re still pushing to get an MRI because he’s still showing some weakness on the left side versus the right that concerns his PT. But all in all, life is pretty sweet these days and thankfulness has finally overtaken fear.

17
Jun
14

Crazy Busy Fun Summer

Big family weddings, moving up to the 2 year old room, zoo trips, and back yard fun. Yay SUMMER! Mommy finished her first class and Daddy starts a new promotion next month.

For Father’s Day,we took daddy to Slamology 2014 in Indy and spent the day looking at custom cars and trucks.

This Friday is our new IFSP and goal setting and we already have to meet with the school system! Hard to believe we’re at 28 months already.

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13
May
14

Mother’s Day Weekend

I received my first school card and gift that Drake made in school. LOVE, Love , love!

Picture Frame. The little bugs are made from his fingerprints.

Mother’s Day card featuring his first school pic!

Then we did our Mom’s Day outing on Saturday instead of Sunday. We took Drake to the Boone County Community Fair and to Spring Fest at Kinman Farms. He had his first hayride and petting zoo experience! Then we had our first family picnic at the park and played around until the thunderstorms came.

It was an awesome weekend, and I was so thankful to Gammy for watching Drake all day Friday. I was able to finish all but one section of my draft for my first assessment paper so I had the time to play hooky this weekend.

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05
May
14

Parents of Preemies Day

May 4th was Parents of Preemies Day. This is an annual event created and supported by Graham’s Foundation to honor the parents of premature babies.

Parents of Preemies Day “recognizes the courage and commitment it takes to stay strong and resilient when premature birth turns a family’s world upside down,” as quoted from the official Parents of Preemies Day website. You can find out more about the joys and challenges of preemie parenthood and ways to celebrate next year!

I had planned on taking part more fully in the official twitter chat because there are no events in our area, but we ended up going to Entertrainment Junction with Gammy to celebrate instead. You can search twitter for #parentsofpreemiesday to catch up on yesterdays conversations.

Our preemie parenting journey started on February 19, 2012. My water broke unexpectedly at 29+6 gestation at 10:10 pm and Drake was born the next morning at 10:07 am at exactly 30 weeks. Drake spent 34 days in the NICU. As a parent of a newborn in the NICU, you celebrate different milestones from other parents. The first day on CPAP instead of intubated. The first day on nasal cannula. The first time they can wear clothes or open their eyes. Day 4, the first day we were able to hold him and do kangaroo care was also the day I was discharged from the hospital. It’s a different world than any expectant couple believes they will experience.

Preemies don’t just go home from the NICU and magically transform into a healthy newborn. Families often face numerous, continuing specialist visits, special equipment, special feeding requirements, and isolation from their family and friends for protection from deadly viruses, such as RSV. Every family has their own unique journey. Our life after NICU follow-ups and specialists included clubfoot treatment, hernia repair surgery, mouth cyst, low tone, ophthalmology, failure to thrive and extra calorie intake, and cardiology. We were in RSV isolation March to June the first year and August to April the second year. We started Early Intervention at 14 months because he was having trouble with gross motor skills and communication. We have been lucky, so far all of Drake’s complications due to prematurity have been treatable.

As his parents, my husband and I both processed our time in the NICU very differently and the past two years have been a challenging time for our marriage. My husband had to work and finish the renovations on our house. My husband and his best friend had stripped our carpets the weekend I went into labor, so we were living at my mother-in-law’s house. I wanted to spend as much time as possible at the NICU, and my employer did not offer paid maternity leave. A lot of my emotional turmoil, pain, and hormones were borne by my husband in those early days. Our parents all still work, and were working out of town. We have recently begun discussing some of our feelings and the things that happened then. Even last year, many things my husband still preferred not to discuss.

Two years later, everything is getting better and our son is unbelievably, undeniably, amazing. We are in awe of him and how far he has come.

I hope all preemies and their parents had a beautiful Parents of Preemies Day 2014!

Side Note: We got his first school pics in last week, and they are fabulous!

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Drake’s 3rd Birthday

February 20th, 2015

Twitter Updates

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