Archive for the 'Insurance Blues' Category

26
Jul
12

Life is PRECIOUS

Sometimes you can’t win the battle, but other times miracles occur. I read a story today about 4th smallest baby to survive finally going home from the NICU. The story didn’t make me wonder whether her family had insurance, money, or the ability to pay for their special needs child.

No one ASKS for a preterm baby. No one PRAYS for a special needs child. Sometimes God gifts you with a miracle, and you as a parent, have to rise to the occasion.

Stories like this are what horrify me about the insurance and healthcare debates. Have people in the US really become this vindictive, cynical, faithless, and spiritless? It’s scary. Who on earth posts a comment that a child is not worth saving. I’d like to believe none of these people were parents, but unfortunately I’ve seen too much of the world to believe that.

I’m really just in shock. I’m sure some of it is postpartum issues I’m dealing with, but I am really and truly upset over this.

Here is the link to the story:

http://abcnews.go.com/Health/worlds-smallest-surviving-babies-home/story?id=16714169

I hope I don’t get backlash from posting on my facebook about it, but I figure anyone upset with me for my opinion can just go away. I don’t need negative, cynical, mean people in my life. Especially not as I navigate the dark waters of life after the NICU, clubfoot treatment, and prematurity.

Now I am not judging parents for making quality of life decisions for their child. ┬áSometimes there is a point of no return and I am so thankful to not have been faced with that decision. However, society has no right to dictate who will and won’t be saved. If we take that out of the hands of medical professionals, I fear for us all.

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16
Jul
12

Challenges

Two issues this week for baby Drake.

1. How to get him to take more formula.

I’ve been trying for two weeks to get him up to the 32 ounces recommended by his pediatrician at our last visit. He prefers to do everything, including eating, in Drake time, so it looks like I have a call to make this week. When he gets tired of taking a bottle, he just sucks it in and spits it out. Like I won’t notice.

2. Socks that work well with his clubfoot brace, and getting him fitted for a bigger one.

Grr baby socks. I need about 2 sometimes 3 pairs a day. These little boogers are great at hiding out and getting lost in the laundry. His grandma gave us a pair that worked PERFECTLY. The top doesn’t squeeze his leg and they fit well. She couldn’t remember where she had picked up this pair. I finally found some at Target yesterday, but they were all sold out of his size. ­čśŽ His toes have reached the end of the sandals so it’s time for new ones! This will be his first move up since starting bracing on June 12th. I’m getting nervous about his appointment to check progress in August. I hope and pray we have been doing things right.

In the meantime, Mommy is trying to let go of some of the guilt as well as prep the family for RSV season looming ahead. I know we have several months, but Drake has two surgeries slated for November. He still won’t qualify for Synagis, and I’m scared to death of him being placed under general anesthesia. I’m hoping that if I prepare everyone for our becoming hermits again this winter there won’t be any backlash. We’ll see…




Drake’s 3rd Birthday

February 20th, 2015

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