Archive for the 'Uncategorized' Category

10
Jul
18

Privacy

I am in the process of making the posts on this site private. This space was about me coming to terms with my motherhood, and it’s shaky start. I am reinventing the mommypeace site, and I am working on something in the prematurity and birth defect space. However, as Drake ages I have become more conscious that he deserves privacy, and I  need to guard my family from the internet and its dangers. Thank you to anyone who ever posted something I enjoyed reading or held a conversation with me in comments here. YOU have helped me more than you can ever realize.

Hugs,

Laura @ mommypeace

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30
Oct
13

Fall

I feel like this can be my favorite season again. Last year, I was worried over surgery and worried over RSV. The fall before I was worried about my pregnancy complications. It feels so weird to come and go as I please. While it was not recommended that we go on full RSV isolation again this winter, we are being cautious.

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11
Oct
13

Meeting Family

D and I are visiting family in Louisiana and Texas this week.

It feels so weird to travel on the cusp of RSV season. This time last year we had already been in strict isolation for a month because he wasn’t gaining weight and hernia surgery was looming.

Yesterday, D got to meet his only first cousin. She’s 4, and they are both only children. They played together very well despite the age difference.

It’s really hard for me to live so far away. I’ve always been close to my parents, sister & brother. Then we grew up in a small town so there are other folks I miss tons as well.

In addition to the emotional cousin meet, we had to go through some things of my granny’s. Another reminder of NICU days. She passed away 2 weeks before D was born.

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01
Oct
13

Battling for Medical Procedures

I really respect our PT from Early Intervention. Drake has made huge strides and we have lots to work on, but he soaks it up like a sponge. 

Yesterday, he was tired so he kept bringing her books to read and climbing into her lap. We still made a little headway on stairs. 

We have been having a lot of trouble with him favoring his right hand for doing fine motor activities over his left hand. Apparently toddlers usually don’t choose this early. I just assumed prior to EI that it was normal preference for a stronger side. 

His physical therapist strongly suggests we try to get approval for an MRI pushed through to check things out. D only had one head ultrasound in the NICU, and she’s concerned that if anything happened to cause the generalized weakness on his left side it was missed. 

Apparently trying to get approval for an MRI for a 19/16.5 month adjusted kid is a big deal because they have to put them under general anesthesia for it. So it’s advocating time again. I’m going to try his pediatrician first, and then I’ll move to the NICU follow-up clinic Neonatologist if I don’t get anywhere with him.

To be perfectly honest, I hate the idea of him going under again, too. It took us weeks to get him back to eating properly after his hernia surgery when it sounds like most kids aren’t phased by it at all. 

I guess I’m wondering if other preemie families have had later diagnostics MRI’s done? Were you glad you did? Did it make a difference in the treatment/therapy avenues you pursued? This is my new “research paper” stuff I’m obsessing over. 

In other news, we are not on isolation this winter. It scares me, and we plan to be cautious but he’s had no respiratory issues and his medical team thinks it’s time. 

26
Aug
13

Buying Shoes and Well (weight) Check Week

I learned an important Mommy lesson this weekend. In my brilliance, I planned to go get D’s next set of shoes from Stride Rite on a Saturday during back to school time. What was I thinking? 

We needed this new pair for Monday’s PT session, and I knew we could drop Daddy at work and be there when the store opened. Apparently every other toddler family in Cincinnati had the same plans. 

Luckily, I was smart enough to take him to breakfast first so at least we weren’t starving. After what felt like an hour of trying to keep D from playing with the girl with that suspicious toddler hack cough, we got his feet measured. No DIsney or Sesame Street novelty shoes for us. We need the hard walking shoes. In two different sizes. His left foot is a little less than half a size smaller than his right which can be pretty typical in clubfoot. Apparently even before you are sure of your kid’s shoe size, you should call ahead and make sure a range of sizes is available. 

Four hours, two malls, 50 miles round trip, a tired angry kid, and the loss of a piece of breakfast quiche we’d picked up to take back to Daddy later we had our two pairs of shoes. Thanks to rewards coupons and BOGO it was only a little more than one pair usually costs. Yay!

Somehow I managed to schedule an appointment for every day this week. It’s also the week before students come back at work, so I have some events and big projects there, too. My two sitters, “the grandmas”, are both going to be out of town this week.

Even though the 12 month well visit went fairly well, I still can feel that anxiety rise. It annoys me. I want to fold it up and put it in winter storage and lock it there. 

Everything has actually been going really well. He’s eating more solids and trying different textures more easily. With the PT and shoe changes, we now officially have a toddler who’s not pulling his hip and ankle ligaments all out of whack (hopefully).

FInal thing – One of my cousin’s friends has a 32 weeker still in the NICU. This little guy has some big surgeries tomorrow and some big hurdles to going home still to get over. He’s 13 weeks old and giving it his best fight. I’ve been passing on some NICU parent sites to his parents in the hopes that it’ll help them when they are ready to talk and look around for that person to listen and understand. He’s having a trache, fudoplication, and g-button surgery Monday morning in the hopes that it’ll give his body the rest and help it needs to get home from the NICU. So if you have a minute at 945am CST, please spare a thought for this little boy and family.

12
Aug
13

Sixteen Years, Thirteen Married

One thing I REALLY haven’t juggled well as a mom is remaining a good wife. Since D is our only child, I have no reference for what things may have been like if our mini family didn’t get off to such a rocky start in the beginning.

August 5th was our wedding anniversary. It was a typical Monday. We both went to work carpooling together. It was one of the days that Drake comes to work with me. That night, we made dinner and watched a movie while eating in the LIVING ROOM instead of at the table. We’re rebels like that. 🙂

I did put a sheet under the high chair though.

It was fun to make our son a part of our celebration. I need to work on the taking the leap and trying a sitting thing though. Gammy and GG aren’t available for date nights very often, and I think it’s past time we work on that.

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Wedding fun fact: We had two wedding songs Everything I Do by Bryan Adams and then It’s the End of the World As We Know It by R.E.M.

11
Aug
13

Nite-Nite Shoes

We’ve reached an interesting place in Drake’s Ponseti treatment. He’s in his first pair of “toe-lift” shoes now that he’s toddling around. For the first time, we’ve started having trouble with rub marks and pressure sores. He’s also at the stage of fighting me when putting on his shoes, and you can’t really reason with a 1 year old. Waking up to shoes being kicked repeatedly into a crib slat while a chorus of “ow, ow, OW, OW, OWWWWWW!” is screamed is also awesome at 6 am on Sunday.

Because the goal is always to stop the red marks from becoming blisters, parents are told to watch for bright red spots that don’t fade away after 20 minutes at the start of the bracing period. 

When I called his doctor’s primary nurse, I was told to try these things and then schedule an appointment with the doctor if nothing worked.

1. Thicker socks.

2. Remove the “pressure saddle” (white plastic curved piece that fits over the middle strap across the ankle) so the straps would tighten futher and reduce any slipping.

3. Cover red marks with the blister cushion band aids or fabric style band aids.

4. Make sure all straps are tightened as tight as possible. 

We are very strict in his brace wear. There’s always a possibility of relapse, but I would hate for the reason to be my not following protocols. I didn’t realize how much I’d miss the 3 month checkups. After 1 year of treatment you go to annual visits, it was nice to “check in” and hear we were doing great last year. 




Drake’s 3rd Birthday

February 20th, 2015

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