Posts Tagged ‘30 weeker

13
Nov
13

Prematurity Awareness Month

November 17th is World Prematurity Day.

I think it’s important that we share our stories and raise awareness because so many people don’t understand. I’m glad they don’t in a way because it means it’s never touched them or their children, but it can be so heartbreaking to fail to find someone who gets it.

A few things about preemies:

1. Mom didn’t cause the early birth. It really falls under S… happens.

2. The journey doesn’t end at the NICU door upon discharge.

3. These kids are amazing.

And the D report:

I am really thankful for D’s therapists in Early Intervention. There are days where I feel like those sessions are the only ones in which my concerns are listened to and addressed. Special people choose to do this work. I can only imagine the rough days they must have, and they are so upbeat and awesome.

At this point last year, we were becoming very concerned with D’s weight gain. His pediatrician was handing out failure to thrive diagnosis and scheduling him in for weight checks. He lost 4 pounds after his hernia surgery. We just could not get that kid to eat. I wonder now if it had to do with the sedation part of things. I researched other parents forum posts and life after nicu discussions, and it didn’t seem to affect any other kids of various gestation that way.  Then at his 9 month/6.5 adj checkup we got the go ahead to try a few “real” solids at Thanksgiving dinner to see if he just didn’t care for baby food puree. He got one bite of mashed potatoes and gravy and things started looking up. We still have our bad days and weeks, but it’s been getting better. He at least has a few go to food loves that, while not healthy, save my sanity by getting something in him. 

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05
Nov
13

Healthy Holidays

It’s that time of year again! I’m thinking of and wishing well all preemie families who have started their lockdowns. It is so necessary and so unfun. You are doing something wonderful for your kid(s) though!

I think the hardest part of our two isolation seasons was the reactions of loved ones who just didn’t understand. Wanting to share our new family with the world and being unable to was rough, and it adds insult to injury when people closest to you treat you like an overprotective crazy person.

Hand to Hold posted an awesome article today about the dangers of RSV and cold and flu for preemie’s immature immune systems and lungs. I posted a sign on our front door, but the free printable they include looks so professional it may keep you from having to endure the “why do I have to wash my hands” talk. 🙂

http://handtohold.org/resources/helpful-articles/5-myths-rsv/

We had a windy, rainy Halloween. Luckily, the weather halted just long enough for the wizard (daddy), lion (mommy), and flying monkey (drake) to walk around to the neighbors.  With two years of being off the grid so to speak, I didn’t really know my neighbors. Halloween taught me just how kind many of them are as they watched at doors and rushed down driveways with candy so that kids could get some trick or treating in and avoid the severe weather.

We had an impromptu pizza and cupcake party at our house with gammy, great granny, a couple friends and us. Then gammy let D stay all night so we could go to a concert. It was an awesome night. Last year, we were changing belly dressings and trying to function on no sleep.

I’ll put some costume pics up soon!

 

28
Aug
13

Breaking the Weight Barrier

Yay! We had a well visit and he weighed over TWENTY POUNDS!!! (20.8), BMI 15.5, and managed to stay on his curve within the bottom 1% for his age.

Since he’s looking good, and growing well we get to try coming off high calorie infant formula and just add some other types of high calorie liquids to his diet along with his food. I am so excited. We said goodbye to bottles about two months ago, and now we get to say goodbye to formula.

I know that it probably seems like a weird milestone to be so excited over. His high calorie formula and weight gain have been at the center of all my worries and fears since he was born. I feel like a very large scary elephant has finally started to lumber out of his corner of the room.

Sterilizing gallons of water and zillions bottle parts. Giving myself second degree burns leaning over a steam bottle sterilizer at 2am. Feeling like we should buy stock in Neosure. Going to cardiology. Having metabolic tests run and then run again. Weight checks.

Done, Done, Done!

For anyone out there still struggling through failure to thrive, or failure to gain, or any other preemie-ness things, I am praying for you and thinking of you, Moms and Dads. I hope you get some unexpected milestones to celebrate, too.

We celebrated last night by taking a picnic dinner to the city skate park and watching the bigger boys do flips and turns. He was ready to push his little umbrella stroller out and join them on the course.

30
Jul
13

Getting Started with EI: Developmental Intervention

Today we’ll have our first visit with our DI. She’s going to work on various things with D, and I’m excited about this meeting.

I have seen amazing changes in him just from the little bit of focus we’ve learned how to spend on some different things. I was really frightened about Early Intervention at first.

It made me feel like a failure that he’s requiring additional oversight, and it brought back all those old feelings from the start of our preemie journey. The actual experience has been very empowering. Even when I was stressed that he might not qualify after some areas of improvement were identified.

Last week, I had a huge set of meetings and projects at work so D spent a couple days with the “grandmas,” his Great Granny and my M-I-L. During that time, he had his first playdate with a little boy we know. This little boy and D had due dates within 3 days of each other. Drake is chronologically older by about 3 months. I had a rough weekend contemplating this conversations with my MIL. 

Me: So how did it go with, B?

MIL: They didn’t really spend much time together at the playground.

Me: Oh?

MIL: Well, B can run all over. D just can’t keep up.

Ouch, another one right in the preemie mama feels. Now I have to decide is more interaction with his peers a good idea? Do we hold back more and just concentrate on therapies for a while? He loves other kids, but I don’t want him steamrolled. I’m definitely having second thoughts about the 1-2 days of school we were planning on in the fall with other 18 month olds.

I think I’ll just plan on taking him on a tour when the year starts. If they have a spot left and being around the other kids goes ok, it’s meant to be. His pediatrician thinks healthwise it’s time to try him out. 

Preemie mama zen. I got this. 🙂

22
Jul
13

17 Months Old Adventure

Saturday D turned 17 months actual, so we woke up early and had a morning zoo adventure. It was the first time we managed to make it to the zoo right at opening. We scored a premium covered spot in the main lot.

We have a zoo membership so we skipped the ticket line and headed for the map to see what we’d like to do for a few hours. We decided on the Insect House, Carousel, and Manatee Springs as our main attractions.

The Insect House adventure started out with a scale that gives your weight in bugs! Wouldn’t that make a fun change from NICU stays measured in grams?

Drake was 2 million bugs.

Daddy was 32 million bugs.

Mommy was 20 million bugs.

We took our first family ride on the carousel. The elephant was a bit too big, but the zebra was just right!

I didn’t take any pictures in Manatee Springs. I was too fascinated by the zookeeper presentation. Confession, I ADORE going to the zoo. 🙂

Cincinnati Zoo is one of only two zoos outside of Florida that host manatees. They are a manatee rehabilitation center which means their manatees stay for a short time to get well and get reintroduced to the wild. Betsy and Woodstock are scheduled to leave sometime this fall. Manatees have small eyes and live in water that is hard to see in, so they have tons of hairs like cat whiskers all over their bodies that help them navigate in the ocean. Yay fun facts!

After the manatees, it was time to head for lunch. I have to say the nursing/family suite at the Cincinnati Zoo is also an amazing space. It’s air conditioned has comfy sofas, a great changing space, and toys for toddlers. We made a side stop for a diaper change before heading to the car. As we left, we noted the LOOOONGG lines that we avoided by going early.

We finished up with some lunch at Izzy’s Deli, and shopping at Tuesday Morning where we scored this fun plaything…

This afternoon is our first PT visit. Time to get to work! It’s hard to believe he’ll be 2 in 7 months, and then we stop adjusting for prematurity.

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18
Jul
13

THE Look

Pet Peeve, time.

We can’t go ANYWHERE lately without being asked how old D is. Then it’s followed by that incredulous look and sometimes with a spoken, “Really?

Ouch. Right in the preemie mama feels.

I was there for his birth if a bit groggy from the no sleep and meds to stop labor. I think I KNOW how old my child is. I have to count every calorie that goes into his mouth, and I still know what his exact weight is.

I usually offer a “he was early” and move on.

I do know someday in the not-too-distant future he’ll start to answer for himself. “I’m this many.”

Will he be questioned, too?

Saturday is 17 months day. We’re going to go to Big Bone Lick State Park and see the fossils and baby bison.

Friday is goal setting day. I’m looking forward to having a more formal plan to guide us for the next 6 months.

09
Jul
13

Back From the Desert

The mounds of laundry are washed but not put away, work has been returned to, and our EI letters arrived yesterday.

Back to reality…

We had an amazing week. D travelled amazingly well for a 1 and few months year old that’s been mostly isolated for much of that time. We got a lot of eyebrow raises about his size at his age of 16 months, but also a lot of compliments on his mellow ‘tude.

There was the first plane ride, first gummi worms, first hike on mama’s back, and first swim. We had a blast.

The final word on EI is that he does qualify for gross motor and a speech delay. Gross motor is the walking issues, and he’s not progressing on the ‘typical’ speech path apparently. Our next meeting is to review our daily routines and concerns at the end of this week.

Sadly, the county we were staying in AZ had a tragic loss of 19 firefighters. Thank you to these brave men and their loved ones. It’s a beautiful savage country out there.

Our Grand Canyon day, it was 98 degrees at the top of the south rim and a balmy 145 at the bottom. Hiking down Bright Angel was discouraged that day. (Especially for plump easterners)!

I did have some elevation sickness. That’s what happens when a bred below sea level Louisiana girl goes up to 10000 ft.

I’m relieved about EI and relieved to be home!

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Trying to push the attendant light

 

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Swim gear! Red Headed fair skinned people need lots of coverup-ing in AZ

 

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Hiking, 5 ft from the GC. Also, ignore the fact that I still look pregnant. wtf

 

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Views, kinda obscured by smog and smoke, but still amazing in person

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Montezuma’s Castle

 

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Mom chasing adventurous son, I felt an amazing kinship with this mini Native American mama after trying to keep D off the condo stairs all week.

 

 




Drake’s 3rd Birthday

February 20th, 2015

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