Posts Tagged ‘cost of prematurity

07
Nov
12

Prematurity Awareness

First, Drake’s surgery went very well. He had no indications of respiratory distress and is recovering well after 1 week. He did seem to lose some weight as it was hard to ramp his feeds back up. He had some mouth swelling due to the hemangioma injection and sounded hoarse from the intubation.

November is prematurity awareness month, culminating in World Prematurity Day on November 17th. I encouage everyone to take this month and learn more about the impact premature birth has on our country and the world.

In the US alone, 1 in 8 babies are born prematurely each year. That’s over half a million preterm infants. The effects of preterm birth are wide ranging from being the leading cause of infant death to developmental issues that continue throughout life.

How can we help reduce the number of babies BORN TOO SOON?

Take the time to review information at the March of Dimes and their research into prematurity and birth defects.

Here are some great resources and preemie parents’ blogs.

March of Dimes – supports research, parent information while a child is in NICU

Kentucky Special Born Too Soon Report – Kentucky has one of the highest rates  of prematurity in the US. I am fortunate enough to live in the Cincinnati metro area with amazing resources like Cincinnati Children’s and Good Samaritan Hospital, but many areas of our state are rural.  Let’s work on 39 weeks Kentucky!

Life with Jack – the journey of a 23 week miracle micropreemie and his family

Ain’t No Roller Coaster – the journey of Owen, a 24 week miracle micropreemie and his family

Hand to Hold – A preemie parent support resource

Life After NICU – A preemie parent support resource

Sincerely,

A Proud Preemie Parent

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26
Jul
12

Life is PRECIOUS

Sometimes you can’t win the battle, but other times miracles occur. I read a story today about 4th smallest baby to survive finally going home from the NICU. The story didn’t make me wonder whether her family had insurance, money, or the ability to pay for their special needs child.

No one ASKS for a preterm baby. No one PRAYS for a special needs child. Sometimes God gifts you with a miracle, and you as a parent, have to rise to the occasion.

Stories like this are what horrify me about the insurance and healthcare debates. Have people in the US really become this vindictive, cynical, faithless, and spiritless? It’s scary. Who on earth posts a comment that a child is not worth saving. I’d like to believe none of these people were parents, but unfortunately I’ve seen too much of the world to believe that.

I’m really just in shock. I’m sure some of it is postpartum issues I’m dealing with, but I am really and truly upset over this.

Here is the link to the story:

http://abcnews.go.com/Health/worlds-smallest-surviving-babies-home/story?id=16714169

I hope I don’t get backlash from posting on my facebook about it, but I figure anyone upset with me for my opinion can just go away. I don’t need negative, cynical, mean people in my life. Especially not as I navigate the dark waters of life after the NICU, clubfoot treatment, and prematurity.

Now I am not judging parents for making quality of life decisions for their child.  Sometimes there is a point of no return and I am so thankful to not have been faced with that decision. However, society has no right to dictate who will and won’t be saved. If we take that out of the hands of medical professionals, I fear for us all.




Drake’s 3rd Birthday

February 20th, 2015

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