Posts Tagged ‘nicu

14
Oct
15

Another Preemie Family

Recently, another set of preemie parents joined the club. Last Saturday, the hubby and I went and delivered a diaper bag stocked with preemie parent goods. A thermometer. Wet Ones, non-scented for sensitive skin. Unscented disinfectant spray. Hand sanitizer. Sensitive skin wipes and preemie and newborn diapers.

It was HARD seeing the hurt in that new mama’s eyes on the day she came home from the hospital without her little girl. We had driven south to help get the extra room done that they thought they had 7 or 8 weeks left to finish. On the drive home, I asked my husband if I looked like that on my discharge day.

We gave out new parent advice, but ours wasn’t about sleeping.

“You will check her breathing all the time. It’s normal for preemie parents, we still do at 3.5.”

“Ask the NICU nurses what nipples match theirs the best. It will make feeding and weight gain a lot easier when you get home.”

“Make sure you check the low end weight on your car seat. They don’t all go low enough.”

Hubby told the dad to invest in some v-neck white t-shirts to make kangaroo care easier.

My heart aches for them. I just hope we were able to show them they are not alone. That feeling of being SO ALONE and like absolutely no one understood was only second to missing our son while he was in the hospital every night.

Luckily, that sweet baby got to go home last night. I wish them a smooth transition home.

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03
May
15

Parents of Preemies Day 2015

This isn’t where you expected to be. You may have dreamed of celebrating Mother’s Day, Father’s Day, Grandparent’s Day. Here you are and it’s Parents of Preemies Day.

What’s this about? Am I celebrating the fact that my child came early and needed weeks or months of hospital care or possibly didn’t get to come home with me?

Nope, Mama or Daddy. It’s about celebrating you. You had to experience every fear of every parent from the first moment of your child’s birth. You are strong and you did what you had to do. You may not feel perfect, but that doesn’t matter.

You can find out more about Parents of Preemies day here:
http://parentsofpreemiesday.org

Happy Parents of Preemies Day. You are awesome.

cuddle PICC dad picking up

Today, I’m not celebrating with my guys because my new school term just started, and I was supposed to take a test on Friday that I have to finish today. But I hope everyone else can enjoy a beautiful Spring day!

15
Sep
14

Happy NICU Nurses Day!

To the Ladies and Gentleman at Good Sam who took care of our little man:

Thank you, thank you, thank you from the bottom of our hearts. Today, we have a two and a half year old full of boundless energy and spirit. He loves Thomas the Tank Engine and Jake & the Neverland Pirates. He says grace when I give him a Hershey’s kiss for going on the potty. He’s just learning to say, “I wub Mommy.”

He’s still in his night-night shoes for his left clubfoot. He’s in SMO’s now for his Hypotonia. He still struggles with weight gain and reflux. However, he loves to play outside. He loves to give hugs. He BEGS to go to his grandma and great-grandma’s house, or to call Nana and Papa on the iPad. He still loves to be held as he falls asleep. He still loves his NICU puppy dog quilt. He’s really excited to be visiting “Mickey’s house” next month and to wear his Jake costume.

We wanted to drop off a card, picture, and some goodies to you today, but Mommy had an early meeting at work. We will stop in later this week.

All Our Love,

Drake’s Family

25
Apr
14

Marching for Babies!

Sunday, the Cincinnati/NKY March for Babies event will be held starting at Paul Brown stadium and ending at Sawyer Point. The walk starts at 9am.

My family will be there, and we will be in our team shirts which just arrived today!

Last night, Drake and I went to community day and pre registration. We found out our team shirt from last year will be part of the area’s new family team quilt a volunteer is creating!

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05
Nov
13

Healthy Holidays

It’s that time of year again! I’m thinking of and wishing well all preemie families who have started their lockdowns. It is so necessary and so unfun. You are doing something wonderful for your kid(s) though!

I think the hardest part of our two isolation seasons was the reactions of loved ones who just didn’t understand. Wanting to share our new family with the world and being unable to was rough, and it adds insult to injury when people closest to you treat you like an overprotective crazy person.

Hand to Hold posted an awesome article today about the dangers of RSV and cold and flu for preemie’s immature immune systems and lungs. I posted a sign on our front door, but the free printable they include looks so professional it may keep you from having to endure the “why do I have to wash my hands” talk. ­čÖé

http://handtohold.org/resources/helpful-articles/5-myths-rsv/

We had a windy, rainy Halloween. Luckily, the weather halted just long enough for the wizard (daddy), lion (mommy), and flying monkey (drake) to walk around to the neighbors. ┬áWith two years of being off the grid so to speak, I didn’t really know my neighbors. Halloween taught me just how kind many of them are as they watched at doors and rushed down driveways with candy so that kids could get some trick or treating in and avoid the severe weather.

We had an impromptu pizza and cupcake party at our house with gammy, great granny, a couple friends and us. Then gammy let D stay all night so we could go to a concert. It was an awesome night. Last year, we were changing belly dressings and trying to function on no sleep.

I’ll put some costume pics up soon!

 

28
Oct
13

Candid Thoughts

This is a post about me. I honestly have spent most of the past two years trying not to think about me, or trying to process the fact that many people close to me wish I would just let the past go and move forward.

In some ways, I am 100 trillion times closer to the me I was in 2011. In some ways, I will never be that woman again. I have been working really hard on myself over the past couple months now that my son is in a “more” stable place.

Mental health, identity, my true feelings on things. These are not topics that I easily discuss in person.

1. I have a short fuse. If I get annoyed, the source of my annoyance is usually going to come out in a form of word vomit that despite my southern upbringing is not very ladylike.

2. Someone close to me got into the habit of telling me that I never have anything nice, positive, or loving to say. That wounded me in a way I doubt I will ever be able to express.

3. In addition to worrying over D’s weight, development, and birth, I worry that I am way too attached to him. And way too overprotective for his own good. I’m trying to work on it, but it’s very hard.

4. I am lucky. My son is strong. We have a great therapy and medical team. I have a decent support system. Why can’t I just get over it?

A FB friend recently posted about the night before her son’s birth. She and her husband didn’t sleep, excited over their new son whose birth had just been induced. Will I ever read that kind of update and just feel happy for the people? No NICU parents will ever have that memory.

Last October, I called my mom sobbing because there is so much I feel like I can’t remember of the night/morning Drake was born. She’s an RN and reminded me that some of that is probably shock or denial, but some is that the meds you areon are amnesiacs and it’s not my fault I can’t remember.

My husband is taking a developmental psychology class this semester. The second  chapter was all about genes, birth defects, and preterm deliveries. He aced the quiz, but said it was awful studying it.

I am going to a conference next month that is working with former NICU parents on family centered care practices. I hope feeling like I am giving back deals with some of this residual stuff.

5. We have NICU clinic follow-up and IFSP meetings coming up soon. We are at the cliff’s edge of “catch up by 2”. His Developmental Interventionist has taken to warning me that they will abruptly stop adjusting his age at the state level in February. I honestly just don’t know how I feel about that stuff.

6. I haven’t felt much like posting. I feel too thankful to write ranting posts. I feel this need to feel happy so I don’t really want to write like I did today about what I worry about.

7.  This is our first Halloween. Last year, it was the day after surgery. This year we are flying monkey, lion, and tin man. Let the treating begin!

8. I joined a gym. I completely wrecked my health last year. My blood pressure when I finally had a dizzy episode and went to the urgent care last December was 175/117. I was having panic attacks over hand washing. I’ve lost about 15 pounds with many still to go. As my health gets better, my husband starts talking about his desire for another child. I’m scared to get healthy because of it. As long as I medically “can’t” it’s a tabled discussion, but I want to be healthy and here for my family. I think I should consider adding a counselor to my team.

I don’t want to be disappointed in 10 years that I could’ve gotten healthy and talked to specialists and completed our family as we’d always planned. I don’t want to send another child to the NICU just to fulfill our desire for more children. I don’t know anything about adoption or my feelings or anyone else’s about it.

9. My best advice to NICU parents is get counseling. I wish I had. I wish someone close to me had told me to. Despite this post, I am in a very good place emotionally compared to last year, but I wish I hadn’t had to claw my way to the surface alone to get here.

World Prematurity Day is next month. Wouldn’t it be nice if all babies could have a healthy start?

15
Sep
13

Happy Neonatal Nurses Day

This is a day late because Drake has his first bad cold and I did not have time to finish.

My mama is a Registered Nurse. I always knew her job was special, but I never truly understood the value of nursing until I witnessed it from the NICU.

Our nurses held and rocked and fed my baby boy when I left each night. They supported me when no breast milk came, and they made sure D got donor milk as long as he could.

They made scrapbook pages and graduation certificates. They gave the first bath and taught me how.

They made me sit that first week before I could hold him even though I wanted to push.

Thank you for your expert care and kindness.




Drake’s 3rd Birthday

February 20th, 2015

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