Today we have our annual follow-up with Orthopedics at Cincinnati Children’s. This will complete our round of follow-ups that run December to March. The only other appointments D will have until next December will be his therapy visits and any sick visits. Talk about an awesome milestone!
I am nervous about today. He will get x-rays of his feet to make sure that all the bones are still growing in the right direction and that we are using his “nite-nite shoes” properly to maintain the correction. I’m also going to have his Ortho surgeon check out the recommendations we have from his physical therapist so we can see what move she thinks we should make about his low tone and hypermobile joints. He’s getting around much better these days, but PT is worried about injury or too much stretching to his ankle ligaments without support now.
When prematurity first struck, I went into salvage mode. For a while, I was just slammed with hormones, with emotions, medical issues, insurance issues, and dealing with the rest of the world issues. Then the first year was medical thing after medical thing worse than the NICU for us. The second year was about growth. I found my groove. Things with D got exponentially better with the right medical and development team.
Recently, with D going to school two days a week, I have increased my work hours and started remembering that I love my job and I was really good at it. I am so thankful that they allowed me the flexibility both to bring him to work on occasion or work from home as needed. I didn’t have to make some hard choices my work was as great a support system as my family.
Now, I’m ready to get back to some things I had planned for during my medical leave that I put on hold. I’m investigating some Master degree programs that will allow me to continue my current work in higher education while possibly preparing me for involvement with curriculum development or even classroom training.
I feel more ME than I have in a long time, and I think that is as good for my family and its future as it is for me.